About

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Living with Chiari Malformation and its related conditions often feels like a lonely, uphill battle. Between the "invisible" symptoms and the years spent searching for answers, many patients are told their pain is all in their head—or that they are simply "crazy."

Crazy by Chiari Inc. was born from a desire to reclaim that word. We aren't "crazy"; we are a resilient community navigating a complex neurological reality. Based in Maryland, we are dedicated to ensuring that no one has to walk this path without a map, a community, or a voice.

We believe that better outcomes happen when patients and providers work together. Our mission is two-fold:

• For the Patient: We provide education, peer support, and resources to help individuals navigate their diagnosis and reclaim their quality of life.
• For the Medical Professional: We advocate for the doctors, nurses, and researchers on the front lines. By supporting the specialists who treat us, we help foster the innovation and funding necessary to advance the standard of Chiari care.

We believe that storytelling is one of the most powerful tools for change. To bridge the gap between the medical community and the patient experience, we host two signature interview series:

• "I’m Listening!": This series focuses on the medical professionals. We sit down with doctors, surgeons, and researchers to hear about the challenges they face, the breakthroughs they are excited about, and how we can better support the work they do.
• "I have a Voice!": This series belongs to the warriors. We provide a platform for patients and families to share their journeys, their triumphs, and the reality of life with Chiari. It is a reminder to the world that we are here, we are resilient, and we will be heard.

Crazy by Chiari Inc. is a registered non-profit corporation in the State of Maryland.

We are currently in the process of filing for 501(c)(3) tax-exempt status. This milestone will allow us to expand our reach, secure vital grants, and provide even more robust support to the Chiari community. We are committed to absolute transparency and integrity as we grow our organization to meet the needs of those we serve.